What to Do When You're Diagnosed With Frontotemporal Dementia
Skip main navigation
Serving Sunbury and surrounding areas.
Type Size
Serving Sunbury and surrounding areas.
Past main navigation Contact Us

What to Do When You're Diagnosed With Frontotemporal Dementia

Are you or a loved one recently diagnosed with frontotemporal dementia (FTD)? If so, you might be feeling a mix of emotions at the moment, and that's completely understandable. Being diagnosed with FTD can be overwhelming, but it's crucial to remember that you're not alone in this journey. 

To help you navigate through this new chapter in your life, Senior Helpers Sunbury has created a helpful guide to outline the steps you should take immediately after the diagnosis. By focusing on lifestyle recommendations and important tasks to handle, we aim to ensure you maintain the best possible quality of life.

Steps After Diagnosis

After receiving a diagnosis of frontotemporal dementia (FTD), there are some immediate steps you can take to ensure you have the right support and resources to help you manage this condition. One of the first things you should do is confirm your diagnosis. FTD can sometimes be mistaken for other conditions. It's always a good idea to seek a second opinion from a medical professional, preferably a specialist in FTD. 

Once you've received a definitive diagnosis, it's important to inform your family and close friends. Sharing this news with your loved ones will not only provide you with much-needed support but also allow you to discuss the potential impact on your relationships and daily life.

Understand Symptoms and Progression

Next, dedicate some time to researching frontotemporal dementia and the resources available to you. Understanding the symptoms and progression of FTD will enable you to better manage the condition and plan for the future. Local and online support groups can offer invaluable advice and encouragement from others experiencing similar challenges, so be sure to explore these resources.

Make Short Term Plans

With a confirmed diagnosis and a better understanding of FTD, it's time to start planning for the short term. Begin by assembling a healthcare team with whom you can establish a trusting relationship. This includes healthcare professionals experienced in FTD and primary care physicians. Working closely with your healthcare team, develop a care plan that assesses your current and future needs for assistance. This plan should also explore options for in-home care, adult day programs, and residential care facilities, depending on your preferences and the progression of your FTD.

Plan for the Long Term

As you look ahead to the long term, continually monitor your care plan and adjust it as needed. FTD is a progressive condition, and your care needs and preferences may change over time. Regularly reassess your care plan with your healthcare team and loved ones. This is to ensure that it continues to meet your needs and support your overall well-being.

Foster a Supportive Environment

Fostering a supportive environment is another key aspect of long-term planning. This includes maintaining open communication with family and friends, participating in support groups, and attending educational programs to stay informed about FTD. Surrounding yourself with a strong support network will help you cope with the challenges associated with this condition and improve your overall quality of life.

Lastly, prioritize self-care and well-being throughout your journey with FTD. Engage in activities and hobbies that bring you joy. Be mindful of strategies for managing stress and maintaining your physical and mental health. This might include regular exercise, spending time outdoors, practicing relaxation techniques, or seeking counseling from a mental health professional.

Get FTD Support From Senior Helpers Sunbury

In conclusion, planning and seeking support are crucial for maintaining the best possible quality of life after an FTD diagnosis. For those living in Lebanon, Lewistown, Danville, Selinsgrove, Milton, or Lewisburg, Senior Helpers Sunbury is here to help. Our experienced and compassionate team can assist you with FTD care planning and provide the services you need as your condition progresses. Contact us today to learn more!